The Immune System

I don’t spend as much time as I think I should learning about the functions of the body and the role of the immune system. Those of us with lupus have been told our immune system is out of whack, thus causing us so much pain and discomfort that it, “can only be controlled with medication.”
I just finished taking a health class at school and I learned that 60% of the immune system resides in the colon, so I have come to the conclusion that if my colon is healthy wouldn’t it stand to reason that the majority of my immune system would be as well? This of course is my personal opinion and I encourage my readers to do their own research and come to your own conclusions.

Medical doctors will always be willing to throw more medication at us to appease our discomfort. However my discomfort is not with lupus(at the moment) but with the medical communities unwillingness to see beyond the disease and see my whole body as an integrated system that has the capacity to heal. Doctors are correct that right now there is no cure for lupus (aka another pill to throw at us) however there is healing from lupus and it starts within each and every one of us. Do your own research on the immune system and the effects of inflammation on the body and how the body does not have to stay in an inflammatory state.  Doctors do not have all the answers, after all they are human and we all know humans are fallible but we also have a great capacity to learn, and grow; so I hope you will learn with me so that we may be healed from this dis-ease within all of us.

Lupus Awareness Day

Today is lupus awareness day, so if you see someone wearing purple today, ask them why? and if they wore purple today just because, then tell them about today, educate them about lupus and help spread the word about this horrible disease. 

Walk For Lupus

I want to say thank you to my brother and to everyone that “Walked for Lupus” today in San Diego Ca to raise awareness about this disease and raised money for the much needed continued research.  My brother walked for me and for all of us who couldn’t walk for ourselves.  Thank you so much Pharns Genece and to all my family members who not only supported the walk today by donating money, but who have supported me in my struggles with this disease.  Words cannot express how grateful I am to have such a supportive family, I truly would not have been able to rise above all the physical and mental challenges I have faced over the past four years without you.  But most importantly thank you God for placing me in the arms of such caring, wonderful people, you knew how much I would need them in my life and you placed the right people, in the right place, at the right time.

I am blessed indeed.

Too Much or Too Little

I am going to a wedding in one week, and my family and I will be driving from Oregon to California.  When you are like me and have a chronic disease like lupus, it is hard to gauge sometimes am I doing too much (and that is why my muscles are sore and my bones hurt) or am I doing too little (playing it safe by resting as much as possible).  Fatigue is a part of lupus, so if I rest because I am tired, then I get more tired because I have rested. That is why my doctor tells me to engage in light exercise such as yoga, Pilates, walking or swimming at least three times a week.   However, with a long drive ahead of me and visiting with family and friends, how do I get the rest I know I will need and still be an active participant in the activities that await me?

That is the same question I ask myself everyday and everyday I have a different answer.  Should I “push” through the pain, fatigue and soreness like I did before I knew I had lupus?  Should I be like the U.S. skier who battled bouts of vertigo for 14 years due to chronic lyme disease and now is in Sochi representing her country in the Olympics? or the Olympic track and field star who like me has lupus? I admire those two women’s strength, courage, tenacity and their decision to “push” through.

I think it comes down to mastery of the mind over the body, because when I didn’t know I had lupus I may have been confused about the weird symptoms I was having, but I did not let that stop me from living my life.  As I did then, and as I will for my upcoming trip to California, I will use my body as a gauge and rest when it tells me to rest, eat when it tells me to eat but use my mind to tell me and remind me that true healing comes from sharing laughter, smiles and participating in the joy of being alive. So, I think while I am on our mini vacation next week, my goal will be to laugh too much not to little and “push” myself to have fun and let God do the rest.



God is never w…

God is never wrong

A king who did not believe in the goodness of God, had a slave
who, in all circumstances, said: My king, do not be discouraged,
because everything God does is perfect, no mistakes!
One day they went hunting and along the way a wild animal
attacked the king. His slave managed to kill the animal, but could not
prevent his majesty losing a finger.
Furious and without showing his gratitude for being saved, the
nobleman said
“Is God good? If He was good, I would not have been attacked
and lose my finger.”
The slave replied:
“My king, despite all these things, I can only tell you that
God is good, and he knows the “why” of all these things. What God does
is perfect. He is never wrong!”
Outraged by the response, the king ordered the arrest of his slave.
Later, he left for another hunting trip and was captured by
savages who made human sacrifices.
On the altar, ready to sacrifice the nobleman, the savages
found that the victim had not one of his fingers, so he was released.
According to them, he was not so complete to be offered to the gods.
Upon his return to the palace, he authorized the release of
his slave whom he received very affectionately.
“My dear, God was really good to me! I was almost killed by
the wild men, but for the lack of a single finger, I was let go! But I
have a question: if God is so good, why did he allow me to put you in
“My King, if I had gone with you in this hunt, I would have
been sacrificed for you, because I have no missing finger, therefore,
remember everything God does is perfect. He is never wrong.”
Often we complain about life, and negative things that happen
to us, forgetting that nothing is random and that everything has a
Every morning, offer your day to God, don’t be in a rush.
Ask God to inspire your thoughts, guide your actions, and ease
your feelings. And do not be afraid. God is never wrong!
You know why this message is for you? I do not know, but God
knows, because he never makes mistakes.
The path of God and his word is perfect, without impurities.
He is the way of all those who trust in Him, as he says in 2 Samuel
22: 31*

What you do with this message is up to you. May God put in
your heart the desire to send it to someone. God knows why He choose
you to receive this message. Please bless someone with it.
God is never wrong.
*2 Samuel 22:31
31 As for God, His way is perfect;
The word of the LORD is proven;
He is a shield to all who trust in Him.

This passage was one of the mass emails that showed up in my email box. I am glad I read it.

It is hard to remember that ” God is never wrong”, especially when I am having a bad lupus day. I think anyone who has been sick and has suffered such discomofort in their own bodies that they felt the only relief would be somehow removing themselves from that body, would find it hard on those days to remember that “God is never wrong”. But somehow, he never is and that is why this passage really touched me.  Because it is not just when I am in pain that he is “never wrong”,  but also when I am not in pain,  he is also never wrong.  In my suffering as well as my joy He is never wrong.